Hi all. I keep thinking about the song, "Somebody Prayed." https://youtu.be/GVITQPGlI30?si=n3loXxLsO6dwWfIq And I am so grateful. I am in remission. I don't have T-Cell Lymphoma with the "dismal prognosis" of 8 years hanging over my head anymore. I am really in remission. And my dear hubby is out of pain. He's only 3 weeks out from his total hip replacement and he is out of pain completely. Now what, Lord? What would you have us do with our days now that you've listened to the prayers and healed us? THANK YOU for any and all prayers, dear ones. I pray we all keep going to him with confidence and humility, listening, learning, and praising. THANK YOU, Lord Jesus. Your ways are perfect. Help us trust you, no matter what.
Hi all. We just met with the main oncologist who is very pleased with how I'm doing. Andy and I walked nearly 1/2 mile (total) yesterday to get lunch. It is good to push myself but my legs are heavy today so we will take it easy this afternoon. I remember when my little sis was here, I couldn't walk to the door of the apartment so I'm definitely improving. I'm nauseous today because a nurse practitioner thought I should be able to do without those meds so I tried going without, but I'm back on them so I'll be better soon. The doc knows we are going home for Easter but warns against crowds or anyone who is sick. He says I should be able to do what I want at 6 months (August 1) because, if I do catch something by then, I should be able to handle it. I guess that means no church or crowds until August 1. I have a bone marrow biopsy and PET scan next week. I'm certain we will be celebrating no signs of disease when we get those results. Andy asked when they co...
So....it's been a minute. It was hard when we came home from the apartment about 3 months after transplant. I expected to feel better. Some weeks later I realized I was finally feeling more normal. The yucky edgy feeling in my body had lifted. I think Andy (hip replacement shortly after I came home) and I became actually euphoric for a bit - there is nothing like relief from pain to make you feel great! Emotionally it has been nice to leave cancer behind in a way I haven't been able to do for so many years. I think that is why I haven't been updating here for so long. I just celebrated the 6 month post transplant milestone. I had a PET scan about two weeks ago. I saw on the portal that some of the old lymph nodes on my neck were showing up again. We cancelled the scheduled removal of my port. We met with the T-cell Lymphoma specialist (Haverkos) remotely a few days ago. He is wondering if the lymph nodes are from my having some dental work done the week before th...
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