Well, hello - and happy December! Time has flown. I took some time to continue recovering from the transplant but then we set off for a trip to chase the fall colors and be with many people we care deeply about. I'll paste our Christmas letter below for a few more details on that. But first... Before we left, I met with the oncologist in Denver (Dr. Haverkos) and shared that I was feeling some familiar swollen lymph nodes. He was uncharacteristically reassuring - stating that they could be from my having some recent dental work done. I've gotten pretty good at putting things out of my mind through this whole thing - and going back to what has helped me the most - relying on the fact that the God of the Universe knows how this whole thing (and everything) turns out. And that He is for us. So we went on our trip and it was magnificent! We got home and I did dread getting the PET scan. I vowed to myself I wouldn't look at it until after Andy's mom's memorial we were...
Hi All, It's been awhile. It is so hard to adequately share all that has been going on. I spent some weeks struggling with what treatments to go with because doctors don't agree and basically, all the options are all a leap of faith. Because I do not have any "B" symptoms of AITL - night sweats, fevers, rashes. And because my lymph nodes are not growing rapidly... I have decided to take the next month for a different kind of healing (love, travel, nature, fresh air) (in addition to about 100 capsules of herbs and supplements a day, 4 tonics, 1 powder, 1 oil, 3 essential oils, ...). Andy has planned this trip for our 30th anniversary and we can't wait to get on the road! We did something similar 31 years ago. We will have a sauna where we are staying most of the time for detox. I will be oil pulling, taking hot baths with Epson Salts and essential oils. Oh yes...don't forget the coffee enemas. I know it sounds gross but it is really no big deal and it s...
Hi There, It's Saturday morning after a confusing and emotional week. It's so hard to describe where I am at. I am so weird socially. I find it hard to "lie" when I am around people but it is also awkward to try to explain what is really going on in our fast paced and "Hi. How are ya?" world. And, as I write this, I feel stupid because, in reality, I have such a nice life. I have been told I have this terrible disease. If I listen to the oncologist here and at City of Hope, I'd better be in treatment. There is a closed Facebook group of people with AITL specifically. As I've said before, it is rare and aggressive. The people on that group warn against waiting before jumping into CHOEP chemotherapy and a stem cell transplant. But...as I read their stories, it seems that standard care just starts a future of relapses and new chemo and other drugs. And then death. I'm sorry to be so blatantly dramatic, but that is the reality. I read strings of ...
Comments
Post a Comment