Day 60 out of 100 today

I can't believe I didn't get any pictures when my big sister was just here for 4 days. She came in from So. Cal. to give my hubby a break and "sister" me as a friend put it. She cooked and cleaned for me and made sure I got up early enough to take my morning meds. She introduced me to some of her favorite channels on YouTube and even gave me a couple massages. She showed her love in dozens of ways and I thank God for her. I have 3 sisters and they all have come in to help us with this process. It has been a huge blessing to have the time with them and to have their help. We have a brother and his wife who would have come too but my hubby wants to be with me so we haven't had the need. Our other brother, the eldest, passed away Feb. of 2023. 




I lied. I did take one picture while Deb was here
having fun with the VR. 

My good friend Tom sent me this information (below) as my labs were analyzed by AI which also created this graph. Tom uses his expertise and generosity to aid people with health issues and teach people how to live healthier and longer lives. He was the first person to mention ChatGPT to me years ago and he uses it to help inform and guide patients. I hope I summed that up accurately. He has so kindly stayed in touch with me through the years and sends me this kind of information periodically. 


I found the information so encouraging. Much of this process is something of a mystery. Two weeks ago my Eosinophils were actually higher than they are now so I'm not worried about the warning.  I have been looking up what the symptoms of Graft versus Host Disease (GvHD) are, however. They are what I've mentioned before - rash, fever, liver stress as shown in labs. They can also be the vague things like fatigue, nausea and vomiting, unusual weakness. 

I have been seriously fatigued yesterday and today with lots of weakness today. The kind I can't just put aside and do what I need to do. 

I find I am pretty wiped out after people come in to give my hubby breaks. It's not that I am entertaining them; it's that these are people I love and want to spend time with so we interact a lot. When my sweet hubby and I are together, we catch up and interact but we have a slower rhythm together- after nearly 40 years together and nearly 5 years of both of us being retired. 

I am hoping to wake up tomorrow feeling like I can do a little more each day again. I go to the clinic every Monday and Thursday so I will let them know if I don't improve by then. 

I hope you and yours are well. Good night. 

















Comments

  1. We were living in the moment Cath I didn’t think to take pictures either, ah shoot. It was great to meet your friend Candy. It was so kind of you Candy to bring food to Cath we ate your banana muffins pronto and your sourdough bread was loved toasted with eggs on top that Cath enjoyed very much thank you, thank you!
    It was great to be with you sis!
    All my love.
    Deb

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