So why all the worry if my numbers are normal?
Hi all,
Not much to report. I go in twice weekly now, for labs and either a nurse visit or provider visit and sometimes others have me on their schedule like social workers, dietitians (It is sooooo great to want to eat again!), program coordinators.
I asked the doctor a bit ago to help me understand that I have normal amounts of white blood cells, neutrophils, and platelets but they are still so concerned about infection. He said something about - there are other things that haven't recovered yet...
I didn't really gain any clarity from the doctor so I asked a Nurse Practitioner who simply said, "You're on very powerful immune suppression (anti-rejection) meds and there are illnesses we don't know if you'd have enough engraphment to fight them off, even with antibiotics. Aha! An answer I could understand. I should be off these drugs by the 100 day mark.
I have only arranged for this housing situation across the street from the hospital until about day 80. I didn't realize they didn't count the days before transplant and I have hoped to do so well, that they will release me early. Wishful thinking? Intuition? Taking control of my situation? Stupid? We shall see.
Good Night All. With love.
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