Doing Very well now. Special time with 2 sons!

It's a challenge sometimes, to identify when something wonderful happens and so many dear people are praying for me - Is the glorious fact that I no longer feel awful all the time an answer to prayer or a result of a drug shift? I am fine without knowing - I am just so very thankful that my only real symptoms now are total hair loss and the awe-inspiring fatigue, both of which I can handle much better than feeling terrible. 

My hubby's 90 year old mom passed away today. He went to California yesterday to be with her and his siblings.

Andy's mom 8.5 years ago with Andy and me. She passed with Andy holding her hand
and reciting the 23rd Psalm to her. What a gift. 


 Our youngest stepped into to be with me for 2 days and a night and now our middle son is here for a couple days and nights. A friend from Al-anon will cover Friday morning so I'm not alone. 

Mason and Lara come to visit. Mason stayed at the apartment with me while Andy went to CA. 

They still have their skills. - Mason

Nolan visiting at the hospital as Andy learns about all the drugs 
and how to do the heparin lock on the trifusion line. 


Nolan stayed with me at the apartment while Andy was in CA. 


The person with me is supposed to know me well enough to recognize if I might need to take my temperature to catch infection early. They should be able to notice if I become confused or get a rash. They commit not to be intoxicated for this 100 days and generally be my caretaker. It's better but the fatigue still makes common things hard so I depend on them for meals and such. And I've committed not to drive so I need them to take me to my appointments which are now twice weekly. I still stay away from public places. 

I'm so grateful to have no signs of GVHD, Graft Versus Host Disease, or Engraphment Syndrome. 

And I'm so grateful for my hubby, kids, siblings, and friends who have buoyed me through what I hope is the toughest part of this whole thing. 




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