Sorry we skipped a day and...pretty status quo medically

 I am laying here, waiting for. my hubby to get here with my sister who will be giving him a break for the next 5 days or so...I realize we forgot to post yesterday. 

Yesterday we went in for the first of the 3 days per week visit to "clinic" at which they do labs and I meet with an APP, Advanced Patient Provider. I actually went in my PJs. I just don't have the energy for the smallest things. The three hour appointment went well. Our biggest concern is getting enough good calories in when absolutely nothing sounds good. I take about 20 medications with each meal, which doesn't help. And I've thrown up a few times after eating, unable to determine if I got the meds or not.

We just move on and hope for the best but I'm doing all I can to ensure that doesn't happen. They said yesterday that a medication I am on for another 18 days can be really hard on the GI tract but "you won't feel human for 6 months or feel like yourself for a year." They all say it - ugh.

Would you believe I was on restricted water for 3 days because my salt levels were seriously low?! Everything seems upside down in this process. They don't want me to overdo it but I'm not on water restrictions  anymore. 

I'm no longer neutropenic (dangerously low immune system) all my labs look great; but they still urge great caution against illness.

Thank you to those asking for our new address:

Andy and Cathie Shaffer 

The Legacy at the Fitz

1363 N. Victor St. Unit #N208

Aurora, CO 80011

Love to you all ! 

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