Day 0 minus 2, or Day 4 of the 100 day process

 Last night, the nurse was very proud to say she believes in letting me sleep. She even unhooked me from "My Little Friend," the IV pole, since I wasn't getting any fluids or anything. It's so much easier to sleep without the tubes and the alarm going off if it senses I am pinching a tube by tossing and turning. 

I fell asleep about 9:30. 

She came in about 11 to get vitals and give me some meds. 

She came in about 2:30am to draw blood. 

Then she came in at 4:00am for vitals and that was it;' I was wide awake. How nice it would have been if she'd combined the last two. 

After doing a crossword puzzle, I turned on the TV and fell asleep about 6. I woke at 7:30 to find my door wide open and a very loud group of people right outside my door. I was disoriented so my mind went to the assumption that my nurse had opened the door to wake me because I was going to be 1st for the MDs team doing rounds. 

As I rushed to get dressed and brushed my teeth, I realized after awhile that it is the Nurse Practitioner, Melissa again, that comes first. She came about 9:30 for a brief visit. And...my door doesn't always latch properly so it probably just opened on its own. 

I am still not feeling very sick but they keep warning me that I will and my nurse finally leveled with me that it gets really hard starting on day 6, which will be Saturday, the day I get the new cells if all goes well. I am a pretty easy patient right now. I can take care of myself for the most part. 

The MD, Dr. Kent, came in by himself and the NP followed a few minutes later. We talked briefly again with no real issues going on. We talked again about the strange restrictions because of the old MRSA issues but nothing can be changed or resolved at this point. 

Today is the last day I will get Fludaramine to prep my body for transplant. My labwork shows my white and red blood cell counts are low but not nearly like they have been in the past...yet. I'll have another medication (Melophlin) tomorrow as sort of "a rest" before I get the transplanted cells. 

I sent Andy home yesterday to get some good rest last night and we decided he should stay home again tonight. He had appointments down there this morning but some cancelled because of snow and white out conditions. I can't be left alone once we move into the apartment the end of February. But I have the nurses and MAs here if I need anything and, again, I'm totally independent at this point. 

I didn't mention it yesterday but a couple of dietitians came in to talk over diet, the probability of weight loss once I start feeling the full effects of this process, and they gave me a supplemental menu of protein shakes, bars, yogurts, and even some high protein desserts. I've been trying them out but haven't found a favorite yet. Shaklee's are better anyhow and I will switch to those once we get outta here. The reiterated that I will be put on a feeding tube if I start to lose weight. 

The Walking Club didn't meet today as the MA who runs it was called to work in another area. My nurse was very sweet and walked me around for a couple laps. I've been doing another suggested exercise of standing up from a seated position, sitting down, and repeating. I might be sore from overdoing it a bit. 

I did some Soduku today, set up an Alexa Echo dear friends got me so it's easy for me to play music in my room, see pictures, and more. Great idea Michele and Francois! 

Overall it was a very quiet day which was fine with me. Good night and God bless y'all! xoxo