Chemo and Immunotherapy #1

 The good news - the port wine discolorations on my skin that looked like old lady bruises are peeling close to my normal color. The bad news - I've been dealing with UTIs - finally a culture to see if we are even treating it correctly came back with a new medication that is working. Sleeping is a challenge - I just can't get comfortable. On the other hand, the evening medicine makes me want to sleep late in the morning. 

Monday I went in for chemo and an immunotherapy drug. I'm more nervous that the last time when I stayed in the hospital for some reason. Maybe it's because the physician's assistant asked me if I'm up for it. I have a PET scan Sept 9. That will determine if this is working. I can already tell lymph nodes are smaller. But I wonder if I will I ever feel normal again, with energy to plan and follow through on plans? 

It is now Thursday. According to the nurse, this should be the hardest day. I can't really complain, as long as I take the anti-nausea drugs. 

I am down to a fraction of the hair I usually have on my head but it has come evenly out on the brush so it's not like I've lost noticeable clumps. It just looks very thin and frizzy. But I don't feel like I have to wear a wig or hat yet. 

Not much more to share. I don't like talking on the phone or with visitors. It takes the energy out of me. But I appreciate the cards and phone messages just sending support. 

Thank you for the love and keeping up on the blog. Sorry the entries have been sparse. xoxo

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