Howdy. I so hope your 2025 is starting off well. We had such a wonderful holiday season with an exceptionally fun time celebrating my 60th birthday, the end of 2024 filled my emotional cup in a very special way. It's been nice having these unexpected free days since going into the hospital was postponed to get organized a bit, meet with friends from my Al-anon group, see our small group from church, go to church which I love, and just regroup after such a busy time. I got another call today from the nurse transplant coordinator. It turns out donor #2, from Poland, is not eligible to donate for some reason. The nurse explained that donor #1, from Germany, was re-contacted - she had told the doctors she could not donate for at least 2 weeks later than what they wanted. Because there is some danger in waiting (if the lymphoma comes back, I'd have to do chemo again before transplant), they had gone on to #2. The first one is now able to donate 1/30 so I will now go into the hosp...
Sorry to have missed 2 days! I have been making the mistake of waiting til the evening to write. I can not explain the sensation of almost panic when I am doing anything - brushing my teeth, for example. I have to lay down. We went in for the three times a week clinic visit yesterday. The NP suggested I take Zophran scheduled, every 8 hours and Zyprexa at night to help with the nausea. I'm committed to that until we go back tomorrow. I have probably not taken enough of these meds on top of the others to really see them work. I called the BMT line of APPs (Advanced Patient Providers) last night. My left shoulder hurt more and more and I wasn't sure about taking Tylenol or Advil (they don't want you to mask fever which is very serious right now), or they gave me Oxycontin, which I didn't know if it is safe with Zyprexa. They made sure it did't sound like a heart attack, told me to take the prescribed amounts of all 3 and to go to the ER and call them if that didn...
Hey everyone, Andy posting tonight. Unfortunately Cath threw up a very yummy Shepards Pie that Hailey made for us. That was about 7, a half hour after she ate and had taken her evening meds. The amount of meds Cath takes is crazy, a few of the critical ones are taken 3x a day, with many others sprinkled in throughout the day. I had to wake Cath at 9:30 this morning because I didn't want her med schedule to be condensed for morning and Noon. Ideally she should have her morning meds at 8 am. I'm going to have to get tough with her!😂 Cath had such a wonderful nights sleep, no nurses checking in every 3 hours. I hope she gets many more to come. Her energy levels are still very low. Her first clinic appointment is at 10:30 am, to draw blood and then get evaluated by Dr. around 11. On her non clinic appointment days, Tues.,& Thur, Sat & Sun. I get to flush her Tri-port with Heparin. 3ml in each one. A sterile procedure that isn't hard but following the steps is the key....
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