Williams Cancer Institute: Dr. Jason Williams Consult 1/17/24

What a ride it was to get to the consult with Dr. Williams. The Patient Consultant, while very nice and professional, is not a nuanced person but a technician whose job is to collect labs and scans and documents to prepare patients to meet with Dr. Williams of the Williams Cancer Institute. I heard of this place in Cabo San Lucas from my dear friend I met 7 years ago at the Cancer Center for Healing in Irvine. She said she has met people there who are going to this place in Mexico for treatment with good results. 

His book, the Immunotherapy Revolution, is available on audiobook for free on YouTube. The first chapter is found at : https://youtu.be/HsowoDUBwf4?si=KRN4gELgajTGaSAE . There are 7 chapters and I highly recommend people listen to it before they have to make decisions on cancer treatment. I've lost friends I've met on this journey - friends who have been much more disciplined than I - and I wish they had some of this information either as or before they turned to the Standard of Care. It might have made a difference. 

I was supposed to meet with him Friday evening via zoom. I emailed early in the day to ask for the zoom link so I could get it to Dr. Raleigh at Restoration Healthcare; she told me she wanted to be on the call. My sister and friend mentioned above would also be on the call with my hubby and I. I didn't hear back so I tried to call a couple times but the line was always busy. 

I was a bit astounded when I called at 3:45 and Juan, the Patient Consultant answered and informed me that Dr. Williams was running late and needed to reschedule. What choice did I have but to agree? I told him only if I could get the zoom link for the following evening right away so that those who were planning to join me, including my doctor, could have the info right away. I forwarded out the links and hoped we'd actually meet. 

The next day, Dr. Raleigh never showed. It's too bad; I think she would have found it interesting. He finally go onto the call about 4:20pm Saturday evening and spent quite a lot of time giving us a peek behind the scenes of such a center. He operates with the use of a foundation and shared that, if a patient spent $150K on their treatment, for example, there is probably $400K spent by "him" behind the scenes. He talked at length about a few patients who were incredibly wealthy and their experiences with cancer treatment through him and through Weil Cornell especially. 

Essentially, for me, he has treated a person with a similar Periperarl T-cell lymphoma (he couldn't remember many details, acknowledging that a lymphoma of the immune system is a tricky business that he is leery of jumping into without a significant amount of more data). The person had gone for conventional treatment expected to work but ended up going to Cabo with only a few weeks expected left to live, according to Weill Cornell. Their treatment had made him worse - much worse. Dr. Williams tried an injection of immunotherapy based on C47 and it worked. They did two rounds. The lymphoma went away. He shared a story about another extremely wealthy patient who had prostate cancer he should have lived with for decades who "the doctors killed" in the states. He through in a couple famous names that he has treated I won't mention here. 

He wants me to contact Brad Wood at the NIH to see if there are any clinical trials or opportunities for me to get a study done called a Nano String Analysis. It costs $10-$12K if I try to get it independently and maybe the government is studying this or something, especially because this is considered rare (it seems everyone's cancers are 'rare and aggressive' these days. I tend to believe it is because they are subcategorizing all the time and the word aggressive justifies the toxic and often destructive treatment protocols). If the NIH can't help me, Dr. Williams also said we might be able to get the costs down if he has have other patients whose tests can be batched. This test essentially gives RNA/DNA information, including what this cancer metabolizes, what receptors it has and proteins is uses, information about the microbiome, and much much more. The abbreviated report is about 20,000 pages and is completed using AI. To be honest, I don't expect much in terms of getting help with this report but I will be praying about it. Another glitch is that they will need new tissue - another biopsy. I know for a fact that UC Health won't share because I went through that with Dr. Nagourney years ago. He also talked about some companies who do this test cheaper but they are considerably slower - like it can take months to get the report.

It is so interesting to talk with people about the cost of healthcare. I know people who will not spend $100 on it because they are so used to having insurance; they think everything should be covered or it is out of the question. On the other hand, I have known people who have mortgaged their homes, cashed out 401Ks, taken their life insurance early, and stopped spouses from retiring to pay for alternative treatment. My mother passed away just before my diagnosis and her business I inherited has paid for my treatment. It would have been nice to do more fun things with it, but I am so grateful that it has been there. I mentioned this dynamic of people like me at least being used to paying for treatment to Dr. Williams and he said that the only people he has had not pay are the super wealthy. He even talked about a patient who "let himself die because he wouldn't pay anything out of pocket." He spent a lot of time on these stories, which I found interesting, but were probably not appropriate on a short consult like this. 

Another interesting topic was the use of AI for medical purposes. I just couldn't wrap my mind around how an independent doctor could develop AI and use it as he does. He explained that he uses Cancer Care AI - once I looked it up I understand it was actually developed by the NIH. 

We did talk about some of the things we've done. When I told him of the 3 targeting drugs, including a PD1 inhibitor, I've tried but that I couldn't tolerate them, he seemed annoyed that the doctors had not offered me Emend (spelling?) for the dangerous rash. He said that 3 pills reduced the rashes by 50% and another 3 to 80%. 

After some discussion, I asked him what advice he would have for me at this point. What I got out of the discussion was that he would not know how to treat me right now but, if I were backed up against a wall, he would try what he did with his other lymphoma patient to see what happened. He did say on at least a couple occasions that he is worried about making my situation worse, however. 

Finally, I asked if he had any recommendations for me, considering the alternative cancer world is so vast and can be overwhelming and confusing. I expected info about diet and supplements and the like...again. Instead, he brought up two completely new interventions. The first one is, Rebyota. As soon as he started talking about it revolutionizing the gut biome, I knew he was talking about fecal transplant. Angie, in his office, is the person who helps patients order it. It has to be shipped on ice to a doctor's office and costs between $12K and $15K. He talked about how every single cancer patient has a gut microbiome problem and he feels that this 1 time treatment could turn things around. He boldly said that, should he ever be diagnosed, he would do this right away. It's a 1 time enema and it has now been produced as a prescription, probably having nothing to do with a healthy person's feces (as was done in the past). In other words, it appears they've taken a natural treatment and made a synthetic alternative. 

The second recommendation is Capsol-T, developed by Dr. James and Dr. Dorothy Morre' in the 70s. It is essentially a combination of high doses of ECCG (Green Tea Extract) and capsaicin from chili peppers. There are no real side effects besides what could be caused by these food like digestive discomfort and it has been found to increase life expectancy for people with several different cancers by 35% using this "supplement" alone. He suggested getting it from the original site, which has a plant leaf on it. I found it easy to find and will start it soon. 

The doctor finished by sharing that he has 100 employees and 150 in biotech, I guess to give us an idea of the scale of his practice. He talked about how he has 200 patients but only wants to take those he can help, usually because they have their backs against the wall. Hence, he is working on the weekends, to his wife's dismay. 

I was happy that my sister was able to get some advice from him for her, as well. Essentially he suggests the same two things for her in the short term, and to stay the course of what is working for her otherwise. And that these "natural" interventions could only help what she is doing now, not hurt.