I've gradually increased Fenben from 250mg twice daily for a few days, to 375, to 500, to 750. When I reached 875 with the goal of getting to 1000mg twice daily, I had increasing diarrhea and a yesterday a terrible headache and nausea so I backed down to 750 mg twice daily. I take Tudco with it, which is supposed to help the liver and Serrapeptase at night when I wake up so that it is on an empty stomach. This is supposed to help the body clear out dead cells and break down biofilms. I was taking 2, but backed down to 1 when I had what may be the Herz reaction.
I have a new large, hard lymph node on the left side of my neck. It reminds me of what I am dealing with, which is probably good. It's motivating me.
Tomorrow I have a consultation with Zahara Sita, who is something of an expert on this protocol and naturally healing cancer in general.
Some good news for me to remember:
-The new big lymph node will give me a way to show the new protocol is working.
- I've slowly reduced Prednisone to 7mg and will go to 6mg today with no new swelling or discomfort. That is huge. I am convinced that something I am taking is helping with that. I was reading about Serrapeptase last night and it could be that. I is used in Japan for inflammation and pain and has been shown to be better than other pain killers in some instances.
- I was reminded by the oncologist that I am still fortunate that I am not having night sweats, fevers, and the rashes that persist on my legs have improved significantly in the last couple weeks.
My email to Zahara is below. I could also add that I've done RIFE, B17, Oil Pulling, Earthing, self-administered Mistletoe shots, and gone to an energy-healer chiropractor. As I've described it, it's like I've been throwing spaghetti at the wall, hoping something would stick. I have felt so fortunate to be stable and to surprise the oncologists. My biggest fear has actually been conventional treatment and all the long-term side effects. I wonder if I've ever actually expected to be NED?
Hello Zahara,
I have an appointment with you tomorrow. My sister who is a new client of yours, Terri Hunt, advised me to send some info to you ahead so here goes… I look forward to speaking with you.
I was diagnosed with T-Cell Lymphoma, Angioimmunoblastic T-Cell Lymphoma or AITL, Feb. of 2017. Stage 3 (also below the diaphram) "A" which became "B" when I developed night sweats, fevers, and rashes. I don't currently have the "B" symptoms. It’s a form of Non-Hodgkin’s Lymphoma. I was diagnosed through biopsy of swollen lymph nodes under my chin, in my neck, and behind my ear with no other symptoms. I have been diagnosed with at least 3 strains of Epstein Barr Virus, which I know I have dealt with for decades and has some connection to this lymphoma. I was diagnosed after an exceptionally stressful time, including 4 significant traumas within a couple of years.
I was advised to start cytotoxic chemotherapy, CHOEP, right away and, if I achieved remission, to have a bone marrow transplant to increase the chances of staying in remission.
Research showed me that most people relapse with T-Cell Lymphomas after all of this treatment and the expected life expectancy with AITL was 19 - 30 months with all of this health-destroying treatment. It just didn't make sense to me to jump into this kind of treatment with these odds. And, to destroy my body's natural defenses while trying to kill cancer. As so many people say, "I'm very healthy, except for having cancer."
I was aware of the Hoxsey Biomedical Clinic in Tijuana, Mexico so I went for a consultation. After using the Hoxsey tonic and being on their diet for several months, I became aware that Hoxsey doesn’t work that well for lymphomas and I was having trouble staying on their diet (no vinegar, tomatoes, alcohol, pork, cheese).
I lived near the Cancer Center for Healing in Southern California and, after reading the book The Cancer Revolution by Dr. Leigh Erin Connealy, I met with her. The place was chaotic and treatment plans were unclear and confusing. I spent a huge amount of money on appointments, supplements, repeated Circulating Tumor Cell and other RGCC testing, hyperbaric chamber sessions, sauna sessions, high dose Vitamin-C and Mistletoe infusions, other IVs, various therapy sessions, Ozone therapy, Hemosonic Lymphatic Drainage, Accupunture, PEMF, SOT injections/individualized cancer vaccines.
One day Dr. Connealy approached me while I was in her center and advised me to go back to City of Hope and do the full cytotoxic chemo regime. It felt out-of-the-blue and I asked her why she thought this. She answer was a harried, “Maybe if we hit it with a hammer.” That was all she gave me. I was perplexed and scared.
I met with a person from her center who offered a therapy called EVOX. I expressed how I was feeling and she helped me tremendously with two statements:
- I can change my mind as I go. I don’t have to decide my path once and for all. I was operating on the belief that I had to chose 1 of two paths and I would be committed forever to that choice.
- My body will show me what to do. And it has!
I changed doctors at the center and used several alternative therapies such as Salacinim and another compound I can't remember, but the greed I saw there and the feeling that I was a guinea pig for a doctor who thinks she is a maverick and will figure it all out on her own made me feel I had to leave. I also moved to Colorado after retiring.
I have spent time at Optimum Health Institute in San Diego, CA (raw vegan eating with wheat grass per Ann Wigmore) and have done 2 medically supervised water fasts at True North in Northern California (19 and 24 days). I have significant gallbladder and other digestive distress during these long fasts.
I follow Chris Wark of Chris Beat Cancer and the principles of Radical Remission by Dr. Kelly Turner but I have had trouble being very disciplined with my diet and supplements the past couple years.
I have used THC/CBD products, including making my own suppositories but don’t use it right now.
I have used Recall Healing and other therapies, including Al-Anon, Spiritual Direction, and one-on-one counseling for the emotional side of things. I'm not great at meditation but have an active faith in God/Jesus that gives me much comfort and strength.
I have surprised the oncologists with consistently stable PET scans for over 6 years (PET scans and biopsies are the only way to monitor this lymphoma) until my most recent PET scan shows some pretty significant progression of some lymph nodes and I can feel them in my neck.
I tend to react to herbs and medications such as Lomatium (I got the terrible itchy rash but was able to take it afterward for an extended time) and I’ve tried 4 targeted drugs suggested through Dr. Nagourney in Long Beach, CA and his Functional Profiling/biopsy tissue testing process. His testing showed I should respond well to cytotoxic chemo if I chose to go that way. The targeted drugs being continually developed are considered a less toxic option to help someone in my position to stay stable as long as possible, but I get dangerous rashes and nausea from them so far. These are offered through the oncologist who monitors me.
I began Fenben about 2 weeks ago at 250mg twice daily. I have gradually increased but occasionally have diarrhea and what I think was a Herz reaction of a terrible headache and nausea X 24 hours. So I reduced to 750mg twice daily. I take Tudco each time I take Fenben with a meal that contains fat. I take a basic multivitamin daily. I take Serrapeptase when I wake up in the middle of the night. I reduced it to 1 cap (60mg) from 2 because of the reactions I seem to be having. In fact, the headache and nausea actually started a couple hours after taking the Serrapeptase a couple nights ago.
Current Medications:
Thyroid medication each morning as I had my thyroid ablated many years ago due to uncontrolled goiters.
7 mg of Predisone daily, which I am gradually decreasing, for significant swelling and pain around my joints due to the lymphoma. I am encouraged that I’ve been able to gradually decrease from 10 to 7 mg so far, since beginning Fenben/Tudco/Serrapeptase. I will continue to decrease this gradually.
I take Progesterone nightly and Estradiol/Testosterone cream twice daily per labs showing I am very deficient (I see a DO/Functional Specialist for all these meds and monitoring)
I take Low Dose Naltrexone nightly for it’s anti-cancer properties.
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