May be needing to shift gears again. Fenben protocol?
I tried the Metformin and, yuk! I felt like I had the flu all the time, terrible heartburn no matter what I ate, and hip pain, especially while trying to sleep. I finally stopped it after about a month and the symptoms went away pretty quickly. I finally got the Revlamid, after a lot of trouble with insurance and pharmacies. Unfortunately I got an itchy rash after only a few days and my doctor told me to go off the Revlamid for about a week, hoping the rash would subside, and then start the medication slowly again. Even having been off the medication for a few days, I was still having to take Benadryl to sleep without such incredible itch. I'm a bit concerned about the rash and some night sweats. After waiting about 10 days, I tried the Revlamid again but the rash came back quickly. Well, that's off the table.
My mindset is a problem right now. I feel powerless over my health. It's like progression of the disease is inevitable and I'll end up having to do CHOEP, which has been my biggest fear. In fact, my oncologist told me that is the next step in her mind. I can't get myself to do the extreme stuff that could help. And I feel stupid about it all. Please...no advice calls on this. It's my path and I'll figure it out and am working on the mental stuff...I promise.
On the other hand, I am looking at starting Fenbendazole or Fenben for short. It's one of those alternative treatments for cancers that is controversial. You take it with other things such as Tudca, which helps remove dying cancer cells. The good scientific research I can find says this protocol only works with basic food supplements, which I have been lazy about lately but will surely get going on again. These are "off lable" drugs so there is always the chance they will become difficult to come by since our government is getting more and more authoritarian about such things. One comment online said it works best for Lymphomas but I can't find good data to support that except in the use for dogs.
Oh ya...one more thing...I have to go for a follow-up CT scan of my lungs as they are worried about a "ground glass" appearance from the last PET Scan. I only add this because this is where I keep track of everything in case I want to look back. I think it's overkill but she was adamant because I have taken Prednisone for so long and she also thought I'd be taking the Revlamid which suppresses the immune system even more, and they worry about pneumonia.
Onward and upward, right? Trusting that I am being led as I have been for 6 years. And that the newly swollen lymph nodes will be shrinking soon and that I will be feeling better with less fatigue. The good news, I haven't had "B symptoms" like night sweats and rashes except for when I take the drug that causes them. If I were having those, I'd be more concerned about the immediate future. There is always a bright side, right?
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