Starting Romedpsin this week.

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Hi all! I hope and pray you are doing well! I thought it was time to give you all a little update. I've been on something of a hiatus from much of what I have learned can reverse cancer since last summer. It's as if I just fall apart after doing the dramatic things like water fasting, strict vegan eating, tons of supplements...whatever. I just can not believe I was diagnosed over 4 years ago now.

There have been times I've realized that I am striving for health when what I know of God's way says that He is in control and I can rely on him and only him. I struggle with what my responsibility is but there is peace in the realization that I can't do it...(heal me)...but God certainly can.

I have been trying to find "my lane."- what I can do that I can keep up longterm to advance and support health, with faith and without all the "fits and starts." We are drinking veggie and fruit smoothies for breakfast, a big fresh salad for lunch or dinner, and trying to be plant-forward on the rest, limiting alcohol and processed foods. I take certain herbs and cannabis as night for sleep and for the health benefits. And some supplements, of course. Hope everyone is taking their Vitamin D3 and Zinc, at least!!!! I am working to increase Omega 3s through ground flax seeds and chia seeds and drinking more water to flush out toxins. I'm always looking at my thoughts and making sure that my thinking supports healing. And...I am daily trying to get in more exercise and rest and joy.

My PET Scans have continued to be pretty stable (SHOCKING the doctors), but I do have some "constitutional" symptoms that are troubling, that they would consider disease advancement. Specifically, my tonsils and adenoids are increasingly swollen, I have to take Prednisone or my joints painfully swell up, and I have some symptomatic itchy rashes that come and go.

I will start a new drug Friday called Romedepsin. If you read my blog, you've heard of it many times. It has been used for Peripheral T-Cell Lymphomas for many years with mixed results. On the Fb groups I follow for people with this type of cancer, the results are all over the place. It has actually brought some people into remission, which I have never been given hope for by the doctors. Others don't get these results and have to quit because of side effects. We will see. I'm not real happy to be back in the IV chair a whole day each week to get it but...I read and pray a lot then which is good.

A world renowned specialist who studies this type of cancer who I went to see in Seattle wants me to use a different drug, Dubilasib/Copektra, as he started using it with elderly people he didn't want to put through cytotoxic chemo, and found it was working about 70% of the time to get them into remission. This is UNHEARD OF with this type. My insurance company won't pay for it, however, (at about $7000 per month) until I "fail" 2 other drug therapies. My oncologist thinks that insurance will pay for it if Romedepsin doesn't work for me. So...we have a fall back plan. One great thing is that it is a pill so I don't have to go sit in the hospital for several hours weekly to get an IV with all the other drugs they give with the IVs that I think make me feel bad.

Anyhow, you'd never know I was sick if you were with me. God has been faithful and merciful through this and has a purpose for it all, for sure. Life is good and we love our home in Colorado and the new life we are building. Praying praying praying you and yours are well and thriving, with hope and joy!!!!