When the rubber meets the road

The drugs mount and my discomfort with that does too. Dr. Mellott has added an IV for nausea and will add an additional one this Friday. I am on 3 different oral drugs as needed to try to make me feel better. But...they really don't. I continue to try things that sound good - carbonated water, different foods...anything that sounds like it will calm my stomach and take away the malaise. Nothing really works.  I met with her this week. We need to do 2 rounds of 3 IVs before we can determine if I can tolerate the drug and to see what we think about it working. My throat is better - Andy told me I am sleeping a lot quieter now. Some rashes I had seem better. I think the "Frankenstein" lymph nodes on the side of my neck are a little smaller. My leg and foot that get a very itchy red rash are completely clear.  And so...it is a mental game of staying positive when I can't accomplish much. I used to be an accomplishment junkie. I am much better now about that but the questi...

 Oh boy oh boy. Got home feeling pretty good yesterday after the Romedepsin IV. Started to sweat and feel weak when I got home. Went to bed and had a very rough afternoon with vomiting, hot and cold with no fever, strange pains like in my knees, and a terrible headache. I took Zophran for the nausea and threw it up. I am so so relieved to wake up feeling so much better the next day. The headache still lingers but is better after a shower. I find myself scared of next week and humbled by all the people doing cytotoxic chemo. I don't think I could handle it. People call me strong for taking a different path with this than has been the norm. Now I think I'm being spared from what I don't think I could handle (the sickness with treatment). Back to eyes on Christ and one day at a time. xoxo

 I can't believe it's been almost a year since I was here at Memorial Hospital North for Belinostat. Now we are trying Romedepsin. It is a 4 hour IV but I got here at 9:00am (the scheduled time) but it is almost 11:00 and they are just starting the actual med. The first access the port, do a steroid IV to reduce reactions (Doxi), then a small amount of saline, and the hospital doesn't prepare the meds until the patient is here and checked out. I expect to be here until about 4. I love how they tell you it's a 4 hour IV but it actually takes double that.  Apparently I should have had an IV before today but no one told me. They look for a change in the IV to monitor side effects.  The things I hope will improve.     1) Reduce the swelling in my throat. It has gotten pretty bad. My uvula is constantly stuck to to my left tonsil. I have a terrible time taking pills these days, eating can be tricky, and trying to go to sleep when I feel like I'm choking can be tough....

What's on your mind, Cathie? Room Photo/Video Tag People New Activity Hi all! I hope and pray you are doing well! I thought it was time to give you all a little update. I've been on something of a hiatus from much of what I have learned can reverse cancer since last summer. It's as if I just fall apart after doing the dramatic things like water fasting, strict vegan eating, tons of supplements...whatever. I just can not believe I was diagnosed over 4 years ago now. There have been times I've realized that I am striving for health when what I know of God's way says that He is in control and I can rely on him and only him. I struggle with what my responsibility is but there is peace in the realization that I can't do it...(heal me)...but God certainly can. I have been trying to find "my lane."- what I can do that I can keep up longterm to advance and support health, with faith and without all the "fits and starts." We are drinking veggie and fr...