Getting ready to start 5 days of IVs again
Hi!
It's been two weeks off of treatment. I started Prednisone again a few days ago because the swelling and joint/muscle pain had returned and especially because I was having trouble sleeping with throat swelling. It feels like my palate collapses when I lay down and relax so I can't really relax enough to sleep.
I am so grateful for the system at University of Colorado Health where I am being treated. They have a portal system that houses my appointments, treatment history, drugs history...everything...and I can message my doctor. She got back to me within a couple hours, asked a couple questions, and put me back on Prednisone which helped pretty quickly.
I met with her Thursday as I must do each time before starting the 5 days of treatment. She and I are watching to see what happens but it may be a thing that I take Prednisone as needed here and there. As with any drug, it has it's side effects that we must weigh against benefits.
I've been feeling pretty good the last couple days and have enjoyed visiting with kids, grandkids, and Andy's brother and his wife. We pray for wisdom with the virus and all and wear masks, wash hands, and use sanitizer a lot for now. It just can't be our new human norm to have to distance ourselves from the ones we love most.
I don't think we will be seeing the kids and grandkids the next couple weeks. My immune system is most at risk 10 - 14 days after chemo, however, which really means I am most at risk during my weeks off. But...last time I didn't feel very well the week of treatment and there is the chance of shedding (or sharing) chemo drugs with others in close contact so I hesitate to be around the kids during treatment. Ho hum. It's all so confusing and can be depressing if I let it.
I can get overwhelmed with the idea that this is indefinite. Then I remind myself to focus on how blessed I am today. Life is really good today. One of my favorite Bible verses is below. It doesn't mean don't be aware of what is going on. It means to set our minds on what is beautiful and that can bring us joy in the journey, trusting that God has it all in hand. As Corrie Ten Boom would say, "Jesus is Victor! Hallelulia!"
It's been two weeks off of treatment. I started Prednisone again a few days ago because the swelling and joint/muscle pain had returned and especially because I was having trouble sleeping with throat swelling. It feels like my palate collapses when I lay down and relax so I can't really relax enough to sleep.
I am so grateful for the system at University of Colorado Health where I am being treated. They have a portal system that houses my appointments, treatment history, drugs history...everything...and I can message my doctor. She got back to me within a couple hours, asked a couple questions, and put me back on Prednisone which helped pretty quickly.
I met with her Thursday as I must do each time before starting the 5 days of treatment. She and I are watching to see what happens but it may be a thing that I take Prednisone as needed here and there. As with any drug, it has it's side effects that we must weigh against benefits.
I've been feeling pretty good the last couple days and have enjoyed visiting with kids, grandkids, and Andy's brother and his wife. We pray for wisdom with the virus and all and wear masks, wash hands, and use sanitizer a lot for now. It just can't be our new human norm to have to distance ourselves from the ones we love most.
I don't think we will be seeing the kids and grandkids the next couple weeks. My immune system is most at risk 10 - 14 days after chemo, however, which really means I am most at risk during my weeks off. But...last time I didn't feel very well the week of treatment and there is the chance of shedding (or sharing) chemo drugs with others in close contact so I hesitate to be around the kids during treatment. Ho hum. It's all so confusing and can be depressing if I let it.
I can get overwhelmed with the idea that this is indefinite. Then I remind myself to focus on how blessed I am today. Life is really good today. One of my favorite Bible verses is below. It doesn't mean don't be aware of what is going on. It means to set our minds on what is beautiful and that can bring us joy in the journey, trusting that God has it all in hand. As Corrie Ten Boom would say, "Jesus is Victor! Hallelulia!"
Philippians 4:8 (NIV)
Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things.
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