When the rubber meets the road

After a wonderful time with our kids and grandkids over the last couple weeks, and a week break from being at the Center with IVs and PEMF and EVOX therapies and Dr. appointments, I have made the decision to set out "on my own," you might say. I woke this morning to an email with a link to a video that helped me realize that I really do have the tools I need to strengthen my body so that it can take care of the cancer. The video is #1 of a series called "Square One" by Chris Wark. chrisbeatcancer.com  This series of videos would be a great place to start with a new diagnosis. If I had seen it and had enough faith at the time, I may have saved us tens of thousands of dollars. Today I got the results from a test for viruses. It turns out my sister has been right all along. Epstien Barr is a precursor to this cancer, as is HIV/AIDS. (Like HPV is a precursor to cervical cancer). The oncologist said he tested of both EBV and HIV and I didn't have them. The doctor...

8/13/17 Today I was surprisingly anxious about a follow up visit to find out the results of blood tests measuring cancer markers. A key one, the CTC (circulating tumor cell) count did go down from 6.4 - 6.0. What does that mean, you ask? Great question. There is a +- 3 sway in the results so it is essentially (probably) not much of a change.  It isn't the dramatic turn around I would have loved to have seen. It's going in the right direction but it isn't dramatic and, well, my life has changed dramatically. And I'm weepy. I'm trying to remember that City of Hope said the cancer was doubling every 34 days so this is actually great news. But I am tired and...weapy.  I'm surrounded by people that are so very much sicker than I. They have experienced so much more pain. Many are ravaged by treatments they've had before coming here. The woman next to me needs new hip sockets because of the chemo they used to get her bladder cancer into remission but, - i...

Hi there.  I met with the doctor and we have a reason to be thankful tonight. My negalase levels are normal. That is a good indication that my body is keeping the cancer in check. If it was high it could have caused me to start low dose but still toxic chemo now and kept the door open to getting a treatment called GCmaf in Japan. I'm relieved that expense is off the table. We are spending a fortune already. I will get a new circulating tumor cell count in a couple weeks which will tell us how much of a change there has been in the last 3 months. Feeling good and cancelling a scheduled appointment with the oncologist. There is nothing for him to do but order a biopsy or pet scan and I won't do either right now. My last day at work was last Thursday so I can do IV therapies that take much of the day 5 days a week for 3 - 5 weeks. Salicinium can change my biochemistry into something cancer cells don't like but only strengthen the healthy ones. Mistletoe is to boost my immune ...

Hi There.  It’s been awhile. I pray this finds you and yours very well.  We are home from our more-than-wonderful motorcycle trek in Canada. We spent 5 precious days in Colorado with the kids and granddaughters before flying to Vancouver, renting the most beautiful and powerful motorcycle, and then making our way around a nearly 2000 mile jaw dropping loop. My hubby led a tour of a similar trip last year and put so much love and care into choosing just the right cabins and lakes and hotels for us. It was just perfect. Today is actually our 30 th wedding anniversary, which was the driver of such an elaborate and special trip. To have found My Drew and to have spent 30 years loving and learning with him is a God given miracle in my life, to say the least. In short, I have started IVs of Salicinium and Mistletoe (for the immune system). This is a 3-5 week protocol with several hours a day 5 days a week. It is incredibly expensive but we hope it's the answer. I will ...

Hi All, It's been awhile. It is so hard to adequately share all that has been going on. I spent some weeks struggling with what treatments to go with because doctors don't agree and basically, all the options are all a leap of faith. Because I do not have any "B" symptoms of AITL - night sweats, fevers, rashes. And because my lymph nodes are not growing rapidly... I have decided to take the next month for a different kind of healing (love, travel, nature, fresh air) (in addition to about 100 capsules of herbs and supplements a day, 4 tonics, 1 powder, 1 oil, 3 essential oils, ...). Andy has planned this trip for our 30th anniversary and we can't wait to get on the road! We did something similar 31 years ago. We will have a sauna where we are staying most of the time for detox. I will be oil pulling, taking hot baths with Epson Salts and essential oils. Oh yes...don't forget the coffee enemas. I know it sounds gross but it is really no big deal and it s...

A huge blessing from this experience has been my time in the Cancer Center for Healing. There are only a few of us that live locally. Most there are living in hotels or rented homes, far from the comfort and convenience of home. I get down about the huge life changes needed to beat this thing. Then I go in and sit next to these people from all over the world, many of them are so so sick, and I realize that my life is good and whole and pain free. The only problems I have are between my ears. I can either enjoy today, this moment, which is all we really have. Or I can squander it on negative emotions and thoughts. Going into the Center straightens out my head - and I have come to love several people there. Ginger and Gary are friendly, talkative people. When I first met Ginger, she told me the Lord had just blessed her by fixing her teeth. I have since learned that many many of us are walking around with infections caused by root canals done improperly so that bacteria is allowed to g...

Hi There, It's Saturday morning after a confusing and emotional week. It's so hard to describe where I am at. I am so weird socially. I find it hard to "lie" when I am around people but it is also awkward to try to explain what is really going on in our fast paced and "Hi. How are ya?" world. And, as I write this, I feel stupid because, in reality, I have such a nice life. I have been told I have this terrible disease. If I listen to the oncologist here and at City of Hope, I'd better be in treatment. There is a closed Facebook group of people with AITL specifically. As I've said before, it is rare and aggressive. The people on that group warn against waiting before jumping into CHOEP chemotherapy and a stem cell transplant. But...as I read their stories, it seems that standard care just starts a future of relapses and new chemo and other drugs. And then death. I'm sorry to be so blatantly dramatic, but that is the reality. I read strings of ...