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Showing posts from August, 2025

6 month post transplant update

 So....it's be a minute.  It was hard when we came home from the apartment about 3 months after transplant. I expected to feel better. Some weeks later I realized I was finally feeling more normal. The yucky edgy feeling in my body had lifted. I think Andy (hip replacement shortly after I came home) and I became actually euphoric for a bit - there is nothing like relief from pain to make you feel great!  Emotionally it has been nice to leave cancer behind in a way I haven't been able to do for so many years. I think that is why I haven't been updating here for so long. I just celebrated the 6 month post transplant milestone. I had a PET scan about two weeks ago. I saw on the portal that some of the old lymph nodes on my neck were showing up again. We cancelled the scheduled removal of my port.  We met with the T-cell Lymphoma specialist (Haverkos) remotely a few days ago. He is wondering if the lymph nodes are from my having some dental work done the week before the ...