When the rubber meets the road

It's been a slog since my last post. As I think I said before, when I hit the 100th day since transplant, I think I expected to feel better. The fatigue and exhaustion, body aches, sore muscles, and incredibly stiff joints just plagued me. I'd wake up every day and not want to get out of bed.  To celebrate the 100 days and my finally going home, we went out to dinners with our kids and grandkids. It didn't end up all together because of a stomach bug but we had 2 nice dinners out. It was also Mother's Day weekend.  The little ones made art projects (I am happily running out of wall space). I love a little heart shaped jewelry box and necklace that remind me of our sweet love. And...I have a new prized possession that will always remind me of this special time and how wonderful my kids are.  They got me a very large bell that Mason has mounted out on our patio. It looks like the bells cancer patients ring when they have completed chemotherapy in the infusion center. Our ...

Even though they warned me, I guess I still expected to feel better by now. I am so weak and whenever I exert myself, I fatigue very quickly.  Part of the exertion issue is that my muscles and joints are so sore and stiff. I can't help but wake up every day with a to-do list that includes moving more, and I do now that I am home, but you can see the problem.  My left shoulder may have a rotator cuff tear, according to a physical therapist, but I can't have any surgeries for at least a year. Both shoulders have tendonitis in them, which is common with BM transplant, which is very painful. So...I know I've been very fortunate through this whole thing. I'm three months into what can be a 1 year process. The secret I suppose is to take it one day at a time, with faith in the process and hope for the future.