Hoping "This too shall pass."
I've just been ... getting through day by day. Dr. Haverkos warned the first few weeks of the trial could be rough, alluding to another patient he feels is similar to me - who he thought he'd have to hospitalize and put on chemo to shrink the lymph nodes piling up in his neck during those first weeks. He was very sick with die off too, but it wasn't happening quickly enough to make it safe. Fortunately he made it and it helped me those first weeks. I am now 6 weeks in, however, and I still almost always feel like I am just sick. The rashes have subsided; I am so thankful. That was replaced by what I describe as a pinched nerve-type thing in my neck that has been driving me crazy for weeks now. It sometimes isn't there, but mostly is. Massage and icy-hot remedies give me temporary relief and my sweet hubby has been so patient and helpful with it. But it comes on and can make functioning pretty hard. I take Advil or Tylenol periodically; they don't always seems to he...