Finally trying Duvilisib/Copiktra
About 2 years ago, right at the beginning of the pandemic, I went to see Dr. Shustov in Seattle. On an lymphoma Facebook group, several people had talked about him as a specialist in T-Cell Lymphomas who, although he is a main-stream researcher and clinician, seemed to listen and use more common sense than the usual oncologist/hematologist who just goes along with the Standard of Care treatments, even though they all agree that they really don't work for most with T-Cell lymphomas. Dr. Shustov spent a very long time with Andy and I, explaining the mechanisms of AITL, what the treatments really do, how very dangerous bone marrow transplants are, and what he might consider. He suggested I try a drug he was involved in developing and that he had been using with his elderly patients that he didn't want to put through cytotoxic chemotherapy and possible transplant. He claimed he was getting terrific results. He has since left his practice and my oncologist, who I like but who I t...